Parents’ heartbreaking words to boy who died after brave fight against disease

A six-year-old boy died from a rare bowel disease after his parents told him he 'did not have to fight anymore'.

William Fenton's family paid tribute to him following his death last Wednesday at Alder Hey Children's Hospital in Liverpool.

The youngster was born with a form of the bowel condition Hirschsprung's disease, known as Total Intestinal Aganglionosis, the Liverpool Echo reports.

His family was told he would not live beyond six months when he was diagnosed.

On social media, his mum and dad paid tribute to friends who followed William's story online throughout his treatment.

David and Jane Fenton said their son's final hours were "very difficult" but also "dignified and peaceful", adding that he had put up "an amazing fight".


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They added: "He was put in fresh pyjamas and surrounded by his favourite teddies.

"We told him that he put up an amazing fight. We told him we loved him and we were proud of him and that he didn't have to fight anymore."

They also praised the efforts of medical staff at Alder Hey, saying they did everything they could do to try and make William better.

The parents added: "No amount of words can truly be enough to thank the doctors and nurses at Alder Hey Children's Hospital.


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"The dedication, compassion and professionalism is truly amazing. I have no doubt that they tried everything they could do to try and make William better.

"Our friends and family have been truly wonderful. Special thanks to both of our parents. They have been with us every step of the way.

"William was a young boy who loved his life for the moment. He never complained about what he couldn't have or do but he embraced the things he could do. He always did things with a cheeky smile on his face.

"He will be remembered by me for being my best friend."


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Speaking to the ECHO, David, 39, said: "William was somebody who lived his life for the moment. Although he had a very complex disease, it never stopped him doing anything.

"He spent a lot of time in hospital, but he was just like any other normal child. He went to school and had great friends, and did everything with a smile on his face.

"He had such a great little life. He's been very happy and his eight-year-old sister Sophia is going to miss him. They were absolutely inseparable and just wanted to be together all the time.

"The disease is so rare that we set up the Facebook page so we could connect people who are going through the same thing."

Friends and members of the public took to Facebook to offer their condolences to William's family.


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Mary Hughes wrote: "Beautiful, beautiful words from an amazing family. Always there for you if you need anything at all.

"It was an honour to have been a small part of William's life and I will hold him in my heart forever."

Vicki Griffiths said: "William was the strongest, happiest little boy I've known and I feel so lucky to have had the pleasure to know him and look after him.

"He was such a fighter & his strength & his smile will never be forgotten. Sending so much love to all of you."

Toni Hill wrote: "How brave of you to be able to write such heartfelt words when your world has changed beyond what I could ever dare to imagine."

Laura Ashley Smallshaw said: "I can't even begin to imagine what you are all going through. You are always in my thoughts.

"William truly was a fighter and an inspiration."

A friend has set up a GoFund me page on behalf of William's family to raise money for funeral costs. The link can be found here.

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